Background and binding are a unique hand dye from QuiltersStitchTogether.com. Stems are ribbon that was inkjet printed. Purchased flowers are watercolor painted. Flower centers are beads, as is the butterfly and the turtle and are both glued and sewn down. Background is free-motion quilted with the words “hope” “love” and “research” with variegated thread.
This is a quilt about fear, specifically about the fear a person feels when they realize their mind is not working right. When they can't think straight. When they can't remember the simplest things. My Dad has Lewy Body Disease, a variant of Alzheimer's tied to Parkinsonism. The symptoms are very much the same as any other dementia.
As my family struggled through the early stages of the disease with Dad it was sometimes hard to remember that the motivation behind all the paranoia, anger, frustration and irritability was plain and simple fear. Try to imagine the devastating horror a person must go through as they get the diagnosis, and then realize that they are no longer capable of handling day-to-day situations. Imagine you can no longer remember names, and later, no longer remember the relationships. Strangers all around you, trying to get you to eat, take pills, take a shower, put clothes on. The disease progresses and there are only flashes when you realize with terror that you have no idea what is going on. The natural reaction is to find somebody or something to blame it on. To find a reason, other than that you are losing yourself, for this craziness that is happening.
I feel physical pain in my heart when I think about how terrifying it must have been for Dad to feel himself slipping away and be powerless to stop it. I get sick to my stomach when I think about the hereditary links and realize that I or one of my siblings may face this fear someday.
These days my Dad is beyond the fear. His irritability now stems from not being able to reason through why somebody is asking him to do something. As sad as it is to see him looking at me with blank eyes, I am glad he is no longer afraid. And there are those wonderful moments when he looks at me with love in his eyes, no longer knowing who I am but knowing that he loves me. When he smiles or reaches out for a hug. As horrible a price as he has paid for this "peace", I am glad it is finally his.
To my Daddy, who motivates all my work for the AAQI.
This quilt is displayed with Fast Finish Triangles